RARE DISEASE DAY -- FEBRUARY 28, 2011 - The Petition Site

• Target: The United States Government
• Sponsored by: Stephanie Hunt

On February 28, 2011 millions of people around the world will observe Rare Disease Day for the 4th year.  This is the 3rd year that the United States will join in.

Rare disorders affect the entire family of an individual patient as they endure ongoing stress and isolation while managing the medical and financial issues that arise.  As a parent of a child with a rare disorder, Stephanie knows very well the hardships that must be overcome.

As Mrs. Michigan America 2010 and Mrs. United States 2007, Stephanie has fought hard for the recognition this day will bring.  Rare Disease Awareness is the platform that Stephanie promoted in her reign as Mrs. United States 2007 and she continues to work as a  spokesperson for NORD, The National Organization for Rare Disorders. 

The goal of this petition is to collect signatures from all walks of life, from those that stand with, behind, and for those affected by Rare Disease.  Collectively we can show that we do care and will take care of our most vulnerable citizens.

Please sign this petition and visit the NORD Website to find out more about how you can continue to help bring this day to life in each and every state in America.

With respect,
Stephanie

http://www.stephanie-hunt.com/

via thepetitionsite.com