Rare Disease Treatment In Northern Ireland - The Petition Site
Friday, November 9, 2012
Friday, September 28, 2012
A Foot Bridge That Is A Jewel In Our History That Is Left Unprotected
Thi foot bridge is one of the oldest footbridges of its kind in Ireland an unmarked jewel like so much of Belfast History that is left unprotected like this Footbridge in Bloomfield
Saturday, July 9, 2011
Palmerston Road And Denorrton Park Under Threat
Palmerston Road Sydenham in East Belfast is once more being held under threat of the Developers once more we have to fight to try and save our green belt that runs from the top of the Palmerston Road to the Station Road we have Developers trying to erect apartments behind homes causing fear among the residents that their homes would be over looked or that water pipes in the area could not cope with waste as the water system is the same as it was many years ago. But the Developers are back once more trying to build apartments on the only part of green belt thats left in the area of Sydenham this is not any other green belt it forms a valley of trees wildlife bats birds the habitat has taken years to grow and some of the trees that are under threat are two hundred years old and the Developers claim the apartments they are planning will be echo friendly yet if they are built with the present planning application it will wipe out a area that has trees of two hundred years old and it will cause the biggest ever change to an area like sydenham that could never be put right as the trees are part of the fibre of Sydenham and the Valley is known in the area as Bunkers Hill after the American War when a soldier returning from that war at Bunkers Hill in American named it after the battle ,They also claim these apartments will be echo friendly yet the plans they are proposing has cut out most of the aspects of the gardens and trees and also removed disabled parking and cycle racks and they claim to be building them for people who have retired
To claim they are eco friendly is a joke when they are planning so much destruction of part of our green belt they seem not to care about what the residents in the area want they dont care about how the residents feel about the private driveway they have planned for the entrance of the site they seem to don't want to listen to peoples concerns many of the people have lived in their homes for many years the site entrance is on to Denorrton Park it is not on a major road it is only a side street of the major Holywood Road that has enough problems with parking and cars parking on the footpaths this Development will bring more traffic to this very quite street and will add to the problems for the residents of the park.
Northern Ireland Planning Service should step back and learn the mistakes from the past the need for them to listen to local residents who already live in the area should have protection from developments like this, when the planning office must see that this development is being shoehorned into a site that is far from suitable and the planning service know the feeling of the residents in Denorrton Park they also seem to have forget to ask the residents of the Palmerston Road how they feel about this development as it will mean overlooking issues Bunkers hill looks over the Palmerston Road and any development would cause major problems for them but the Planning Service seem not to care about the feeling of residents on the Palmerston Road that such a major change to the habitat is being railroaded through behind their backs and have not any say in what may cause major problems in the future for them as well as make a difference in how they feel living in an area that trees will be replaced with apartment blocks and their privacy will be compromised by this development and the opening of the floodgates to other developers moving into the area offering huge amounts of money to residents to move out. To enable them to build more apartments because the Northern Ireland Planning Service can not protect or preserve the heritage of the residents who have lived in the area and bring their children up in the homes it will cause a huge change for the residents they will be expected to live with overlooking issues where once their homes looked out on a hill covered in green habitat and if the flood gates open it will mean for the residents that apartments will take the place of homes and mean people looking down on them day and night
We ask the Northern Ireland Planning Service to look after the rights of the residents from the Palmerston Road who's privacy is being compromised if the Northern Ireland Planning Service do not stand up for their rights of privacy it would be a great miss justice to them we ask the Northern Ireland Planning Service to carry out a proper survey in the area to include residents from Denorrton Park,Palmerston Road,Larkfield Park,Palmerston Park,Victoria Road,all residents that would be affected if this green belt was removed to make way for developments if the flood gates were to open causing a domino effect along this only part of green belt that is left in the Sydenham Area that is so important to the residents
We ask Harry Roston Architect Ltd and Limetree Retirement Homes to meet the residents of the area and give them their chance to speak with the reps in the area before these amended plans are put in place and action taken to start any development at this site some of our residents are in their retirement and have lived in the area for most of their married life or it is married children of the retired please think of how this development and any future developments would have on their lives
,
To claim they are eco friendly is a joke when they are planning so much destruction of part of our green belt they seem not to care about what the residents in the area want they dont care about how the residents feel about the private driveway they have planned for the entrance of the site they seem to don't want to listen to peoples concerns many of the people have lived in their homes for many years the site entrance is on to Denorrton Park it is not on a major road it is only a side street of the major Holywood Road that has enough problems with parking and cars parking on the footpaths this Development will bring more traffic to this very quite street and will add to the problems for the residents of the park.
Northern Ireland Planning Service should step back and learn the mistakes from the past the need for them to listen to local residents who already live in the area should have protection from developments like this, when the planning office must see that this development is being shoehorned into a site that is far from suitable and the planning service know the feeling of the residents in Denorrton Park they also seem to have forget to ask the residents of the Palmerston Road how they feel about this development as it will mean overlooking issues Bunkers hill looks over the Palmerston Road and any development would cause major problems for them but the Planning Service seem not to care about the feeling of residents on the Palmerston Road that such a major change to the habitat is being railroaded through behind their backs and have not any say in what may cause major problems in the future for them as well as make a difference in how they feel living in an area that trees will be replaced with apartment blocks and their privacy will be compromised by this development and the opening of the floodgates to other developers moving into the area offering huge amounts of money to residents to move out. To enable them to build more apartments because the Northern Ireland Planning Service can not protect or preserve the heritage of the residents who have lived in the area and bring their children up in the homes it will cause a huge change for the residents they will be expected to live with overlooking issues where once their homes looked out on a hill covered in green habitat and if the flood gates open it will mean for the residents that apartments will take the place of homes and mean people looking down on them day and night
We ask the Northern Ireland Planning Service to look after the rights of the residents from the Palmerston Road who's privacy is being compromised if the Northern Ireland Planning Service do not stand up for their rights of privacy it would be a great miss justice to them we ask the Northern Ireland Planning Service to carry out a proper survey in the area to include residents from Denorrton Park,Palmerston Road,Larkfield Park,Palmerston Park,Victoria Road,all residents that would be affected if this green belt was removed to make way for developments if the flood gates were to open causing a domino effect along this only part of green belt that is left in the Sydenham Area that is so important to the residents
We ask Harry Roston Architect Ltd and Limetree Retirement Homes to meet the residents of the area and give them their chance to speak with the reps in the area before these amended plans are put in place and action taken to start any development at this site some of our residents are in their retirement and have lived in the area for most of their married life or it is married children of the retired please think of how this development and any future developments would have on their lives
,
Monday, March 21, 2011
Friday, March 11, 2011
raredisease-ni - Just another WordPress weblog
A Meeting is planned to take place in the month of March of the Raredisease Fourm the meeting will be to set up the board and to plan our Press release and the way forward on policy
The Cavan Tommy Hoey Trust organisors of Rare Disease Day in Northern Ireland have set up a new group that will be called Raredisease Northern Ireland Forum. It has been established to run and to organise Rare Disease Day, it will also set up a forum for patients and families and carers of people with rare diseases. It will be a support network for patients and families and carers of people with rare diseases.
Tuesday, March 1, 2011
Saturday, February 26, 2011
RARE DISEASE DAY -- FEBRUARY 28, 2011 - The Petition Site
- Target: The United States Government
- Sponsored by: Stephanie Hunt
On February 28, 2011 millions of people around the world will observe Rare Disease Day for the 4th year. This is the 3rd year that the United States will join in.
Rare disorders affect the entire family of an individual patient as they endure ongoing stress and isolation while managing the medical and financial issues that arise. As a parent of a child with a rare disorder, Stephanie knows very well the hardships that must be overcome.
As Mrs. Michigan America 2010 and Mrs. United States 2007, Stephanie has fought hard for the recognition this day will bring. Rare Disease Awareness is the platform that Stephanie promoted in her reign as Mrs. United States 2007 and she continues to work as a spokesperson for NORD, The National Organization for Rare Disorders.
The goal of this petition is to collect signatures from all walks of life, from those that stand with, behind, and for those affected by Rare Disease. Collectively we can show that we do care and will take care of our most vulnerable citizens.
Please sign this petition and visit the NORD Website to find out more about how you can continue to help bring this day to life in each and every state in America.
With respect,
Stephanie
RARE DISEASE DAY -- FEBRUARY 28, 2011 - The Petition Site
- Target: The United States Government
- Sponsored by: Stephanie Hunt
On February 28, 2011 millions of people around the world will observe Rare Disease Day for the 4th year. This is the 3rd year that the United States will join in.
Rare disorders affect the entire family of an individual patient as they endure ongoing stress and isolation while managing the medical and financial issues that arise. As a parent of a child with a rare disorder, Stephanie knows very well the hardships that must be overcome.
As Mrs. Michigan America 2010 and Mrs. United States 2007, Stephanie has fought hard for the recognition this day will bring. Rare Disease Awareness is the platform that Stephanie promoted in her reign as Mrs. United States 2007 and she continues to work as a spokesperson for NORD, The National Organization for Rare Disorders.
The goal of this petition is to collect signatures from all walks of life, from those that stand with, behind, and for those affected by Rare Disease. Collectively we can show that we do care and will take care of our most vulnerable citizens.
Please sign this petition and visit the NORD Website to find out more about how you can continue to help bring this day to life in each and every state in America.
With respect,
Stephanie
Subscribe to:
Posts (Atom)
